Photo from the 2014 Worldwide Chicago Lyme Rally A few months ago I signed a petition on Change.org to have the CDC, IDSA & ALDF investigated for corruption in regards to their public handling of Lyme Disease. The petition is run by a man named Carl Tuttle, and he is my real-life super hero. I… Continue reading In the News: Lyme insurance bill unanimously passes Illinois House!
When you have a PICC line you have to always wear a protective sleeve over it so the line isn't getting dragged or caught in anything, but you don't have to be stuck with the white gauze-looking sleeve that the hospital will most likely give you. There are some other options out there that can… Continue reading Lyme Survival Guide: 3 types of sleeves to cover your PICC line with, including a fun one! 🙂
Other than "What are your symptoms?", my least favorite question to answer is "What is your current medication list?". I immediately feel a wave of exhaustion come over me knowing there's no way to answer it all on the spot, it's going to take a long time to list them all, I'm not going to… Continue reading Hold onto your butts! This is my current medication, vitamin & supplement list, and how I keep track of it all.
A step-by-step guide of my daily IV antibiotics infusion process, to show what it's like using a PICC line for the treatment of Lyme Disease.
One of my most debilitating Lyme symptoms is back pain. It limits me so much. I used to be a runner, I ran the Boston Marathon in 2009, but around 2015 I started getting so much intense back pain and overall weakness that I went from running a few miles every weekend to being unable… Continue reading Lyme Survival Guide: Using Prime Wardrobe to shop for clothes & shoes
I have officially begun my first experience with Chinese herbs as another protocol for my Lyme treatment. I've obviously heard about Chinese herbs and Chinese medicine before, but I've never tried it myself and honestly felt deep down like it was a little "hokey". My illness and treatment is also already a full-time job to… Continue reading Entering the world of Chinese Herbs
Both my Lyme Doctor and my Psychiatrist/Naturopath have been telling me for months now that I need to start adding an Infrared (IR) Sauna to my routine to help boost my detox protocol. The problem is most days (due to nausea or pain or whatever) I can barely get out to go to the grocery… Continue reading Just got my Infrared Sauna for Lyme Detox!
Today started with a short quote I thought to myself about pain and positivity: Just as depression can cause pain, happiness can relieve it. And it's such a fascinating thing to think about because it just shows how insanely powerful our invisible thoughts are. It's weird. It doesn't make sense how a thought can be… Continue reading The invisible map that makes us “us”.
12/12/17 I keep losing days. I thought I had just missed one day of my daily journal, but just noticed it was almost 3 days ago. This keeps happening to me, especially as each day tends to be so similar to the last - wake up, sit on the couch, sleep, repeat. Sometimes I don't… Continue reading Fallout 4 & Buddhism
12/09/17 Quasi and I had such a nice walk on the beach at this morning's small dog Meetup. I met this really sweet woman named Chloe who was there with her dog and husband. She was telling me that their house was just broken into while they were in their house up near Seal Rock,… Continue reading Small Dogs & Home Thievery
The Lyme Life 