Blog, In the News

Look Lymies! We’ve gone viral… ;)

Wouldn't that be such a strange twist of fate if these silly memes that are coming from the COVID pandemic bring more attention to Lyme Disease, and from that attention everything Lyme-related gets an extra oomph of the push we need to improve treatment options, insurance coverage, testing, and increase support for Lyme's financial, physical… Continue reading Look Lymies! We’ve gone viral… 😉

In the News, The Lyme Survival Guide

Lyme in the Time of COVID

Okay, so apparently - May is Lyme Disease Awareness month?? Why didn't anyone tell me this earlier?! 🙂 Well in honor of having our very own fancy month, LymeDisease.org offer their "Lyme in the Time of COVID" magazine issue for FREE. Thanks guys! "Free" and "Lyme Disease" never seem to go together - just the… Continue reading Lyme in the Time of COVID

Blog

Letter to the Editor: The Screamer

This is not related to my illness, but it’s another issue plaguing the neighborhood I live in – which adds to my daily stress levels, which probably do affect my overall health. But still – the residents of my neighborhood are suffering and need help.

Richmond Review/Sunset Beacon

Editor:
Is it possible to live on the sidewalk for years and still maintain your health?  Not just maintain but thrive? There is a man who has made his home on the sidewalk in our neighborhood for at least the last ten years, under the awning of Europa Express at 750 La Playa Street.
We call him the Screamer but some locals refer to him as Marco.  With no tent or sleeping bag, and only the occasional blanket over his shoulders to protect against the night chill, he is a constant presence. Not only does he live on the sidewalk, in only the clothes he’s wearing, but he can sit cross-legged in the one spot for the entire night. I will see him there at 5 in the afternoon, at 9 before I retire, at 1 a.m. when I’m up during the night, and he is still there at 6…

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Blog

Had my first Grand Mal Seizure. Whoa… didn’t see that one coming!

Earlier this week I was playing a board game with my husband, and suddenly there were paramedics helping me into an ambulance. I've had a lot of fainting and partial seizures because of my POTS syndrome (also called "the fainting disease)" that I developed as a complication from Neuro Lyme. But those are really fast,… Continue reading Had my first Grand Mal Seizure. Whoa… didn’t see that one coming!

In the News

In the News: Lyme insurance bill unanimously passes Illinois House!

Photo from the 2014 Worldwide Chicago Lyme Rally A few months ago I signed a petition on Change.org to have the CDC, IDSA & ALDF investigated for corruption in regards to their public handling of Lyme Disease. The petition is run by a man named Carl Tuttle, and he is my real-life super hero. I… Continue reading In the News: Lyme insurance bill unanimously passes Illinois House!

The Lyme Survival Guide

Lyme Survival Guide: 3 types of sleeves to cover your PICC line with, including a fun one! :)

When you have a PICC line you have to always wear a protective sleeve over it so the line isn't getting dragged or caught in anything, but you don't have to be stuck with the white gauze-looking sleeve that the hospital will most likely give you. There are some other options out there that can… Continue reading Lyme Survival Guide: 3 types of sleeves to cover your PICC line with, including a fun one! 🙂