A step-by-step guide of my daily IV antibiotics infusion process, to show what it's like using a PICC line for the treatment of Lyme Disease.
Wouldn't that be such a strange twist of fate if these silly memes that are coming from the COVID pandemic bring more attention to Lyme Disease, and from that attention everything Lyme-related gets an extra oomph of the push we need to improve treatment options, insurance coverage, testing, and increase support for Lyme's financial, physical… Continue reading Look Lymies! We’ve gone viral… 😉
Okay, so apparently - May is Lyme Disease Awareness month?? Why didn't anyone tell me this earlier?! 🙂 Well in honor of having our very own fancy month, LymeDisease.org offer their "Lyme in the Time of COVID" magazine issue for FREE. Thanks guys! "Free" and "Lyme Disease" never seem to go together - just the… Continue reading Lyme in the Time of COVID
This is not related to my illness, but it’s another issue plaguing the neighborhood I live in – which adds to my daily stress levels, which probably do affect my overall health. But still – the residents of my neighborhood are suffering and need help.
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Earlier this week I was playing a board game with my husband, and suddenly there were paramedics helping me into an ambulance. I've had a lot of fainting and partial seizures because of my POTS syndrome (also called "the fainting disease)" that I developed as a complication from Neuro Lyme. But those are really fast,… Continue reading Had my first Grand Mal Seizure. Whoa… didn’t see that one coming!
Yup. I know it's lame to the layman, but I'm super excited about it 'cuz for me it's AWESOME! Normally doing a 1,000 piece puzzle wouldn't be cause for celebration, but for me it's something I used to love to do but haven't been able to for at least a couple years. Because of my… Continue reading I did a puzzle today!
I've been in Lyme treatment now for about 2 1/2 years. When I first started I was so motivated because I FINALLY had a diagnosis after years of mystery. I was reading every book my doctors recommended about Lyme. I had my A+ overachiever hat on and I was determined to be the BEST PATIENT… Continue reading Losing my “Treatment Steam”
If your illness is like the ocean, therapy can act like a surfboard, helping you to ride your illness like a wave. ❤
"Denial" by KEVIN MCGIVERN When you are slowly coming to terms with being chronically ill, and slowly realizing that you are no longer able to do what you used to be able to do - like being front row at a Rob Zombie concert 🤘, or taking your dog to your favorite hiking spot -… Continue reading “Do 1/3 less than you think you can.”
Photo from the 2014 Worldwide Chicago Lyme Rally A few months ago I signed a petition on Change.org to have the CDC, IDSA & ALDF investigated for corruption in regards to their public handling of Lyme Disease. The petition is run by a man named Carl Tuttle, and he is my real-life super hero. I… Continue reading In the News: Lyme insurance bill unanimously passes Illinois House!
When you have a PICC line you have to always wear a protective sleeve over it so the line isn't getting dragged or caught in anything, but you don't have to be stuck with the white gauze-looking sleeve that the hospital will most likely give you. There are some other options out there that can… Continue reading Lyme Survival Guide: 3 types of sleeves to cover your PICC line with, including a fun one! 🙂