A step-by-step guide of my daily IV antibiotics infusion process, to show what it's like using a PICC line for the treatment of Lyme Disease.
Blog
Lessons from a Procrastinator
Spongebob Squarepants Procrastination from QuickMeme "There's no way I can do this," I thought to myself as I nervously got ready for my first class at Indiana University's Luddy School of Informatics. "I can't believe it's really happening. I'm gonna be a PhD student!" I'm 38 years old, and it's been 16 years since I… Continue reading Lessons from a Procrastinator
Intro to Health Informatics Blog (Full Journal)
Top Lessons What’s been helpful I’ve noticed is having personal events scheduled to be an added motivator to get work done early, rather than just to meet the assignment deadlines. Will power not enough and can cause more avoidant behavior - perfection adds to stress, and progress decreases it, but mental exhaustion wall can be… Continue reading Intro to Health Informatics Blog (Full Journal)
Look Lymies! We’ve gone viral… ;)
Wouldn't that be such a strange twist of fate if these silly memes that are coming from the COVID pandemic bring more attention to Lyme Disease, and from that attention everything Lyme-related gets an extra oomph of the push we need to improve treatment options, insurance coverage, testing, and increase support for Lyme's financial, physical… Continue reading Look Lymies! We’ve gone viral… 😉
Lyme in the Time of COVID
Okay, so apparently - May is Lyme Disease Awareness month?? Why didn't anyone tell me this earlier?! 🙂 Well in honor of having our very own fancy month, LymeDisease.org offer their "Lyme in the Time of COVID" magazine issue for FREE. Thanks guys! "Free" and "Lyme Disease" never seem to go together - just the… Continue reading Lyme in the Time of COVID
Letter to the Editor: The Screamer
This is not related to my illness, but it’s another issue plaguing the neighborhood I live in – which adds to my daily stress levels, which probably do affect my overall health. But still – the residents of my neighborhood are suffering and need help.
Editor:
Is it possible to live on the sidewalk for years and still maintain your health? Not just maintain but thrive? There is a man who has made his home on the sidewalk in our neighborhood for at least the last ten years, under the awning of Europa Express at 750 La Playa Street.
We call him the Screamer but some locals refer to him as Marco. With no tent or sleeping bag, and only the occasional blanket over his shoulders to protect against the night chill, he is a constant presence. Not only does he live on the sidewalk, in only the clothes he’s wearing, but he can sit cross-legged in the one spot for the entire night. I will see him there at 5 in the afternoon, at 9 before I retire, at 1 a.m. when I’m up during the night, and he is still there at 6…
View original post 1,201 more words
Had my first Grand Mal Seizure. Whoa… didn’t see that one coming!
Earlier this week I was playing a board game with my husband, and suddenly there were paramedics helping me into an ambulance. I've had a lot of fainting and partial seizures because of my POTS syndrome (also called "the fainting disease)" that I developed as a complication from Neuro Lyme. But those are really fast,… Continue reading Had my first Grand Mal Seizure. Whoa… didn’t see that one coming!
I did a puzzle today!
Yup. I know it's lame to the layman, but I'm super excited about it 'cuz for me it's AWESOME! Normally doing a 1,000 piece puzzle wouldn't be cause for celebration, but for me it's something I used to love to do but haven't been able to for at least a couple years. Because of my… Continue reading I did a puzzle today!
Losing my “Treatment Steam”
I've been in Lyme treatment now for about 2 1/2 years. When I first started I was so motivated because I FINALLY had a diagnosis after years of mystery. I was reading every book my doctors recommended about Lyme. I had my A+ overachiever hat on and I was determined to be the BEST PATIENT… Continue reading Losing my “Treatment Steam”
If my illness is the ocean, therapy is my surfboard
If your illness is like the ocean, therapy can act like a surfboard, helping you to ride your illness like a wave. ❤
“Do 1/3 less than you think you can.”
"Denial" by KEVIN MCGIVERN When you are slowly coming to terms with being chronically ill, and slowly realizing that you are no longer able to do what you used to be able to do - like being front row at a Rob Zombie concert 🤘, or taking your dog to your favorite hiking spot -… Continue reading “Do 1/3 less than you think you can.”
The Lyme Life 